End-User Privacy, Security, and Data Ownership Concerns on the Helsenorge Platform: a Mixed-Methods Study

EasyChair Preprint 15593

Abstract

This study explores end-users perceptions of privacy, secu- rity, and data ownership (PSDO) of Helsenorge, a leading e-health plat- form in Norway. By surveying over 100 users from diverse demographics, this study evaluates their understanding of the PSDO landscape, their sentiments, and their expectations for future improvements. The find- ings suggest that most users know the importance of PSDO features but are unaware of them, highlighting the gap between the significance of these features and user awareness. Additionally, the findings suggest that privacy can be improved through selective data sharing, configurable consent, and granular access controls, while security can be enhanced by increasing transparent data access, accountability, multi-factor authenti- cation (MFA), transparent audit trails, and robust encryption. Addition- ally, improving data ownership might provide users with greater control and ownership over their health records, fostering trust in the platform, and educating them on the related challenges and risks. The paper con- cludes by discussing the potential adoption of self-sovereign identity (SSI) and Web 3.0 technologies to address these challenges.

Keyphrases: Helsenorge, Privacy, Security, data ownership

@booklet{EasyChair:15593,
  author    = {Abha Pokharel and Surya Kathayat and Casandra Grundstrom},
  title     = {End-User Privacy, Security, and Data Ownership Concerns on the Helsenorge Platform: a Mixed-Methods Study},
  howpublished = {EasyChair Preprint 15593},
  year      = {EasyChair, 2024}}